The association aims to raise awareness about the consequences of this hereditary and degenerative neuromuscular disease, which affects 1 in 5,000 boys and manifests between the ages of 2 and 6. Women are carriers, while males can suffer from it.
The mayor highlighted the importance of fundraising and the awareness campaign to obtain public and private resources for research. He announced that the Bridge and the fountain of the VII Centenario will be illuminated in red for World Muscular Dystrophy Awareness Day.
José María Román emphasized the need to increase economic resources for research into rare diseases like this, expressing his support for families and his hope that children can lead normal lives.
Chari Virués, representing the association, stressed the goal of informing citizens and raising funds for research with the aim of finding a cure.
